Tuesday, March 3, 2009

TEST TIME AGAIN!

HI EVERYBODY!
Just wanted to let you know I have my testing done tomorrow, Thursday and the Monday of Spring Break. Tomorrow, March 4th, I will have my X-Rays, CT Scan, part 1 of my MIBG Scan, bloodwork, complete physical, and begin my 24-hour urine test. I have done a great job giving up chocolate, vanilla & bananas the last 2 days. . .thank goodness for pink milk and food without vanilla or chocolate! (I sure miss my chocolate milk but think pink milk is cool since some of my favorite TV characters (Charlie & Lola) drink it.) The real test will come tomorrow. I can't eat or drink from 6am - 12:30pm. THAT IS A WHOLE MORNING! Would you please pray that I make it through those 6 hours without too many hunger pains? I will also have to have an IV line tomorrow. . .would you please pray my veins are good and easy to find so I only have to be stuck 1 time? These 2 things are of our greatest concern. . .I can be brave and make it through the rest of the day since it only involves being very still and cooperating with the people at the hospital - at least there will be no more owies! (I'm finally potty trained so I don't have to have a catheter this time! HOORAY!) The good thing about tomorrow is I get to see Dr. Habersang again! (He is the one who brought me back when my ventilator tube was pulled in '07.) I haven't seen him in a year and a half - boy will he be impressed with all I've learned! I also get to meet his wife. . .I think she is going to take over as my pediatrician now that I'm doing so good.
On Thursday we will complete the MIBG Scan and the urine test.
The next 2 days will be exhausting and not much fun. We have been and will continue to pray for everything to go well. Thank goodness for Memaw and Dodi - Memaw will help on Wednesday and Dodi will help on Thursday. They will help my Daddy get me through all the tests. Mom will be there but can't be around all the radiation; she says it's not good for Guyson. It's GREAT living so close to my grandmas!
On Monday, March 16th, I have a bone scan done. Then. . .I'll be THROUGH WITH ALL TESTING ONCE AGAIN!!! HOORAY!
Thank you so much for keeping me in your prayers! We will not get the test results back until the end of March. However, we all know I'm doing great and they will be perfect! God is so GOOD to me!
Love,Jayci Joy